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On March 18th, the Japan Medical Association announced that there were 290 cases of doctors deciding that a patient needed to be tested for coronavirus, and even then the patients were not tested. The term used by JMA “不適切事例” literally translated means “inappropriate/unsuitable cases”.
The government of Prime Minister Shinzo Abe seems intent on keeping the official numbers of infected down and that means not only making the standards for getting a test very high (for example, you must have a fever of over 37.5 degrees Celsius for four days) but it also seems to be actively discouraging tests.
Nathalie Kyoko-Stucky interviewed one woman who was denied testing in Tokyo. This is her story.
Patient Zero, age 31 is a project manager in Japan working for an IT firm. She asked for her name to be omitted and some details of her story obscured for fear of being stigmatized socially. She lives in Tokyo.
“I started to feel very tired March 7th and had a low fever of 37.2. Thought i was just tired from work. On Monday, I felt really tired at work and on Tuesday, I struggled to go to the office and only stayed 2 hours and came home. Tuesday night, I started to get a cough and by 10pm I felt i was getting sick and my fever was 37.5 degrees.
Wednesday morning I woke up feeling sick and extremely tired and had a fever of 38 degrees.
Over the next few days, I stayed in bed sick. I started feeling a pain in my chest and it was getting painful to breathe. On Saturday, I called the Coronavirus hotline because by that point I had fever over 37.5 for 4 days.
I called them because I didn’t know what to do. I didn’t want to go to a normal hospital and accidentally spread it so I called for advice.
The lady told me that the Shinagawa Healthcare Center (品川保健所）is closed on the weekend, and I should call them on Monday when they opened. But, she said if I became sicker, I should just go to the hospital.
On Sunday there was still no improvement. I had pneumonia when I was in high school and my body felt similar to that time so I was a bit worried. So I called the hospital and told them my story and that at the minimum I wanted an x-ray. They told me, “Okay please come in.”
At the hospital they asked if I went to an onsen, had overseas travel, or if was in direct contact with a COVID-19 patient. I said no.
Luckily my x-ray came back clear for pneumonia, but the doctor diagnosed me with pleurisy.
Note:(Pleurisy (PLOOR-ih-see) is a condition in which the pleura — two large, thin layers of tissue that separate the lungs from the chest wall — becomes inflamed. Also called pleuritis, pleurisy causes sharp chest pain (pleuritic pain) that worsens during breathing.It can be caused by viral infections, pneumonia and other conditions
I felt the doctor was kind but his hands were tied.
On Monday, my fever was will going between 37.5-38, and my boyfriend called the health care center. It took hours to get through because the phone line was always busy.
After getting through to someone and explaining the situation, the women answering the phone said she can’t authorize a test because I have not traveled abroad and I have no direct contact with a COVID19 patient.
Her advice was, ” If it is still bad or gets worse in a few days, go back to the hospital and beg the doctor himself to call the healthcare center and request a test for me.
At that point I realized it’s impossible to get a test. I didn’t want to risk going outside and accidentally infecting someone.
Unfortunately, the part which is most frustrating for me now is that I don’t know if I actually have it or not.I was considering trying to go back to the US to help my mother who is in her seventies, but I cannot risk going back and spreading it to her.
Luckily today, on March 21, it was the first day that I haven’t had a fever since March 7. I lost my voice and talking still irritates my lungs but most of the chest pain is gone.
So I had fever for 14 days. It’s very surreal.
I was so surprised why they set up the hotline to call, but advice from both numbers was “just to go the hospital”.
I expected they would tell me where to go for example or perhaps advise me to stay home in quarantine.
What’s the point of a hotline if the advice is “just go to the hospital”?
Personally that made me feel like there is not much fear about it spreading in the medical establishment. This worries me.
Also as a side note, I had been extra careful , carrying hand sanitizer everywhere I went and also never was outside without a mask. I even was using taxis the majority of the time to avoid the train.
This is just one example of a person who most likely should have been tested for the virus and was not. If you have experienced something similar, please write us with the heading CVTESTS at email@example.com